My story for Rare Disease Day 2024 Pompe disease is considered a rare genetic disease, affecting somewhere between 10,000 to 40,000 people worldwide, ranging from Infantile Pompe to Late Onset Pompe. When I was diagnosed, it was known as an incurable disease for which there was no treatment nor hope of a future treatment since …
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Category:Guest Post
GUEST POST from Don – GHOST CABIN (chapter 5)
GHOST CABIN, Chapter 5 Charlotte said, “First, the murder of your daughter. Second, your own murder. Third, betrayal. The least difficult of the three is probably your own death. People die every day and don’t hang around as ghosts.” The ghost got it instantly, “Three … “ Sedona commented, “Yes. If you never separated the three events in your mind, …
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GUEST POST from Don – Fear This, Not That – part II
FEAR THIS, NOT THAT (2) There is so much to fear in this world, and many things SHOULD be feared, but reality is that some things are far more dangerous than others. For instance, if you fear penguins, but don’t live in Antarctica … maybe you should put your efforts into more significant issues. I …
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GUEST POST from Don: GHOST CABIN (chapter 4)
GHOST CABIN, Chapter 4 The wraith responded, “I was so ashamed. I loved him so much and it seemed right at the time. Looking back, I agree that it was not a decision for our best.” The older daughter responded, “Times were different for you than they are today. Now it is not uncommon to have a child …
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GUEST POST by Don: Who’s A Good Boy!!!
“WHO’S A GOOD BOY!!!” When I was very young, prior to school age, we lived on a 2 lane country Lane 3 miles from town. There we owned a weimaraner. We were poor, so I am sure it was not pure-bred. However, its nature was very accurate for the breed. Good around kids. Protective. Enjoyed shared activities. Didn’t drool. Let’s just say, …
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GUEST POST from Don: GHOST CABIN (chapter 3)
GHOST CABIN, Chapter 3 The young women were not encouraged by the ghost’s attitude, but they were “in it” now. Sadly, there was little choice but to press ahead. The younger daughter continued, “The second important fact is that sometimes we imagine that the person who mistreated us did so because of something WE did or said. We …
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GUEST POST from Don – Conspiracy Theories
WHY DO PEOPLE FALL FOR CONSPIRACY THEORIES? Wrong question! Right question …”Why do conspiracy theories make sense?”Right answer … “If there wasn’t some truth to them, and lack of truth elsewhere, no one would believe them.” First, Conspiracy Theories exist because the truth has been withheld. When there is utter openness and honesty and verifiable-ness…a Conspiracy …
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GUEST POST from Don: GHOST CABIN (chapter 2)
GHOST CABIN, Chapter 2 Late evening the subject of the tapping came up. I commented that I did not believe in ghosts, but I would write a story called “Ghost Cabin” just because it was a compelling title. I pulled out my notebook and wrote that at the top of a clean page. I spent an easy half …
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GUEST POST from Don: Songs I Like
SONGS I LIKE Who knows music more than I? … Almost everyone! Who has a better playlist than I? … Everyone (including your 6 year old). So, don’t listen to anything I have to say about music or musicians. I don’t know a thing…except what I like. I have an oddly eclectic list … Let me start off by …
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GUEST POST from Don: GHOST CABIN (chapter 1)
GHOST CABIN (A story of a GHOST and COUNSELING) The best thing about renting a cabin instead of a B&B in the deep Fall is that nothing matches and nothing is new. There is not a full set of silverware or plates … maybe 9 plates (3 of which came from a similar era, but don’t match). Besides, …
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